G2TT
来源类型Report
规范类型报告
DOIhttps://doi.org/10.7249/RR1191
来源IDRR-1191-PCORI
National Patient-Centered Clinical Research Network (PCORnet) Phase I: Final Evaluation Report
Justin W. Timbie; Robert S. Rudin; Vivian L. Towe; Emily K. Chen; Lauren E. Hunter; Spencer R. Case; Virginia Kotzias; Zachary Predmore; Shaela Moen; M. Susan Ridgely
发表日期2015-12-31
出版年2015
页码164
语种英语
结论 National Patient-Centered Clinical Research Network (PCORnet) Phase I: Final Evaluation Report | RAND
摘要

The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit, nongovernmental organization authorized under the Affordable Care Act of 2010 to help close gaps in research evidence that are needed to optimize patient and clinician decisionmaking and improve health outcomes. To enhance the nation's capacity to conduct comparative effectiveness research, PCORI has invested more than $100 million in the development of PCORnet, the National Patient-Centered Clinical Research Network. The centerpiece of the PCORnet initiative is a distributed research network that combines clinical data from electronic health records (EHRs) and data contributed directly by patients from participating networks located throughout the United States. A distributed network allows a spectrum of analyses to be conducted without the physical pooling of data, which remain behind the protection of each institution's firewalls.

,

Phase I of PCORnet's development was dedicated to building its governance, technical, and research infrastructure. This report describes the findings of a formative evaluation of PCORnet's Phase I activities and addresses PCORnet's readiness to conduct research in Phase II. PCORnet made substantial progress during its initial phase of development and operations including standardizing vast amounts of EHR data, developing database querying capabilities, and implementing streamlined institutional review board processes. However, many challenges remain. The degree to which PCORnet's governance structure can effectively guide the network during its research phase, and the extent to which PCORnet can obtain claims data to supplement EHR data and develop compelling use cases for potential funders will determine the network's future success.

目录
  • Chapter One

    Introduction

  • Chapter Two

    PCORnet’s Foundations, Goals, and Participants

  • Chapter Three

    Evaluation Methodology

  • Chapter Four

    Developing and Implementing PCORnet’s Governance Infrastructure

  • Chapter Five

    Developing PCORnet’s Data Infrastructure

  • Chapter Six

    Developing PCORnet’s Research Infrastructure

  • Chapter Seven

    Developing a Culture of Collaboration

  • Chapter Eight

    Engaging Stakeholders in PCORnet

  • Chapter Nine

    Conclusion

  • Appendix

    Task Forces

主题Electronic Medical Records ; Evidence Based Health Practice ; Health Care Technology ; Health Interventions ; Patient-Centered Care ; United States
URLhttps://www.rand.org/pubs/research_reports/RR1191.html
来源智库RAND Corporation (United States)
引用统计
资源类型智库出版物
条目标识符http://119.78.100.153/handle/2XGU8XDN/522929
推荐引用方式
GB/T 7714
Justin W. Timbie,Robert S. Rudin,Vivian L. Towe,et al. National Patient-Centered Clinical Research Network (PCORnet) Phase I: Final Evaluation Report. 2015.
条目包含的文件
文件名称/大小 资源类型 版本类型 开放类型 使用许可
RAND_RR1191.pdf(6919KB)智库出版物 限制开放CC BY-NC-SA浏览
x1600116294721.jpg.p(2KB)智库出版物 限制开放CC BY-NC-SA浏览
个性服务
推荐该条目
保存到收藏夹
导出为Endnote文件
谷歌学术
谷歌学术中相似的文章
[Justin W. Timbie]的文章
[Robert S. Rudin]的文章
[Vivian L. Towe]的文章
百度学术
百度学术中相似的文章
[Justin W. Timbie]的文章
[Robert S. Rudin]的文章
[Vivian L. Towe]的文章
必应学术
必应学术中相似的文章
[Justin W. Timbie]的文章
[Robert S. Rudin]的文章
[Vivian L. Towe]的文章
相关权益政策
暂无数据
收藏/分享
文件名: RAND_RR1191.pdf
格式: Adobe PDF
文件名: x1600116294721.jpg.pagespeed.ic.7opaarY6CK.jpg
格式: JPEG

除非特别说明,本系统中所有内容都受版权保护,并保留所有权利。