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来源类型 | Report |
规范类型 | 报告 |
DOI | https://doi.org/10.7249/RR1972 |
来源ID | RR-1972-EFPIA |
Understanding value in health data ecosystems: A review of current evidence and ways forward | |
Sonja Marjanovic; Ioana Ghiga; Miaoqing Yang; Anna Knack | |
发表日期 | 2017-04-27 |
出版年 | 2017 |
页码 | 64 |
语种 | 英语 |
结论 |
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摘要 | The potential of health data to improve the efficiency and effectiveness of health research and development, healthcare delivery, and health systems more widely is substantial. There are many initiatives across the EU that are experimenting with ways to capture value and address the nexus of technical, legal, ethics-related, governance and data protection-related, and cultural challenges to delivering potential benefits for society and the economy. The field of health data research and policy is highly dynamic and there is a need for further reflection, thematic learning and evaluation to better understand how to create and connect receptive places, to inform future interventions and to identify transferable lessons. Our research emphasises that realising the benefits of health data at scale will require: a simultaneous focus on the technological and structural conditions that are required; collaboration and coordination to transform working cultures and build health and care workforce and citizen capacity to engage with data; and efforts to ensure that policy, industry, and research communities respond to public concerns, needs, and expectations in a timely and sustained manner. The global community of individuals and organisations with a stake in health data will also need to consider how progress can benefit different populations across the world in an equitable manner. |
目录 |
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主题 | Big Data ; Cyber and Data Sciences ; Data Privacy ; Data Science ; European Union ; Health Information Privacy ; Health Information Technology Interoperability |
URL | https://www.rand.org/pubs/research_reports/RR1972.html |
来源智库 | RAND Corporation (United States) |
引用统计 | |
资源类型 | 智库出版物 |
条目标识符 | http://119.78.100.153/handle/2XGU8XDN/523291 |
推荐引用方式 GB/T 7714 | Sonja Marjanovic,Ioana Ghiga,Miaoqing Yang,et al. Understanding value in health data ecosystems: A review of current evidence and ways forward. 2017. |
条目包含的文件 | ||||||
文件名称/大小 | 资源类型 | 版本类型 | 开放类型 | 使用许可 | ||
RAND_RR1972.pdf(1485KB) | 智库出版物 | 限制开放 | CC BY-NC-SA | 浏览 | ||
1600184811551.jpg(9KB) | 智库出版物 | 限制开放 | CC BY-NC-SA | ![]() 浏览 |
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