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来源类型 | Report |
规范类型 | 报告 |
DOI | https://doi.org/10.7249/RR4262 |
来源ID | RR-4262-ROCHE |
Exploring the societal burden of multiple sclerosis: A study into the non-clinical impact of the disease, including changes with progression | |
Daniela Rodriguez-Rincon; Brandi Leach; Jack Pollard; Sarah Parkinson; Evangelos Gkousis; Catherine A. Lichten; Jon Sussex; Catriona Manville | |
发表日期 | 2019-11-18 |
出版年 | 2019 |
页码 | 83 |
语种 | 英语 |
结论 |
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摘要 | MS is a chronic, progressive disease of the central nervous system, which affects more than 2.2 million people worldwide. In addition to the health burden on people affected by MS, it is a disease associated with high costs in terms of both medical costs and wider economic costs to society, as well as requiring a high amount of informal care provided at home. RAND Europe undertook a study to understand the non-clinical impacts of MS with specific focus on disease progression. We addressed this question from the perspective of the individual with MS, their carers and broader society using a literature review and key informant interviews. We found that there are a range of impacts of MS on individuals with MS and on their carers and that the majority of the literature focuses on the individual. We concluded that MS is a shared experience between the individual with MS and their carers lived in different ways. We found that the impacts of MS on society are mainly captured as the monetary costs associated with the disease, although there are additional costs that are not widely described or captured in the literature. There is limited literature exploring the range of impacts affected by disease progression, although it is clear that the negative impacts of MS increase with disease progression. Across the countries included in our study, individuals with MS have access to psychosocial support although there is room for improvement on public services. Improved psychosocial support could be provided to carers. |
目录 |
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主题 | Caregivers ; Chronic Diseases and Conditions ; Health Care Costs ; Mental Health and Illness ; Neurological Disorders |
URL | https://www.rand.org/pubs/research_reports/RR4262.html |
来源智库 | RAND Corporation (United States) |
引用统计 | |
资源类型 | 智库出版物 |
条目标识符 | http://119.78.100.153/handle/2XGU8XDN/523946 |
推荐引用方式 GB/T 7714 | Daniela Rodriguez-Rincon,Brandi Leach,Jack Pollard,et al. Exploring the societal burden of multiple sclerosis: A study into the non-clinical impact of the disease, including changes with progression. 2019. |
条目包含的文件 | ||||||
文件名称/大小 | 资源类型 | 版本类型 | 开放类型 | 使用许可 | ||
RAND_RR4262.pdf(1250KB) | 智库出版物 | 限制开放 | CC BY-NC-SA | 浏览 | ||
x1600095397389.jpg.p(4KB) | 智库出版物 | 限制开放 | CC BY-NC-SA | 浏览 |
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