G2TT
来源类型Report
规范类型报告
DOIhttps://doi.org/10.7249/RR4262
来源IDRR-4262-ROCHE
Exploring the societal burden of multiple sclerosis: A study into the non-clinical impact of the disease, including changes with progression
Daniela Rodriguez-Rincon; Brandi Leach; Jack Pollard; Sarah Parkinson; Evangelos Gkousis; Catherine A. Lichten; Jon Sussex; Catriona Manville
发表日期2019-11-18
出版年2019
页码83
语种英语
结论
  • There are a range of impacts of MS on individuals with MS and on their carers. However, the majority of the literature focuses on the impact on the individuals with MS.
  • MS is a shared experience between the individual with MS and their carers lived in different ways.
  • The impacts of MS on society are mainly captured as the monetary costs associated with the disease. However, there are additional impacts on society that are not widely described or captured in the literature.
  • There is limited literature exploring the range of impacts affected by disease progression. However, it is clear that the negative impacts of MS increase with disease progression.
  • Across the countries included in our study, individuals with MS have access to psychosocial support although there is room for improvement on public services. Improved psychosocial support could be provided to carers
摘要

MS is a chronic, progressive disease of the central nervous system, which affects more than 2.2 million people worldwide. In addition to the health burden on people affected by MS, it is a disease associated with high costs in terms of both medical costs and wider economic costs to society, as well as requiring a high amount of informal care provided at home. RAND Europe undertook a study to understand the non-clinical impacts of MS with specific focus on disease progression. We addressed this question from the perspective of the individual with MS, their carers and broader society using a literature review and key informant interviews. We found that there are a range of impacts of MS on individuals with MS and on their carers and that the majority of the literature focuses on the individual. We concluded that MS is a shared experience between the individual with MS and their carers lived in different ways. We found that the impacts of MS on society are mainly captured as the monetary costs associated with the disease, although there are additional costs that are not widely described or captured in the literature. There is limited literature exploring the range of impacts affected by disease progression, although it is clear that the negative impacts of MS increase with disease progression. Across the countries included in our study, individuals with MS have access to psychosocial support although there is room for improvement on public services. Improved psychosocial support could be provided to carers.

目录
  • Chapter One

    Introduction

  • Chapter Two

    Methods

  • Chapter Three

    What is the evidence in the peer-reviewed literature on the impact of disease progression in MS?

  • Chapter Four

    Impacts of MS on the individual

  • Chapter Five

    Impacts of MS on carers and family

  • Chapter Six

    Impacts of MS on society

  • Chapter Seven

    Implications for policy and research

  • Annex A

    Literature review data extraction template

  • Annex B

    Interview protocol

  • Annex C

    Participant information sheet and consent form

  • Annex D

    Interview codes

  • Annex E

    Interview analysis template

主题Caregivers ; Chronic Diseases and Conditions ; Health Care Costs ; Mental Health and Illness ; Neurological Disorders
URLhttps://www.rand.org/pubs/research_reports/RR4262.html
来源智库RAND Corporation (United States)
引用统计
资源类型智库出版物
条目标识符http://119.78.100.153/handle/2XGU8XDN/523946
推荐引用方式
GB/T 7714
Daniela Rodriguez-Rincon,Brandi Leach,Jack Pollard,et al. Exploring the societal burden of multiple sclerosis: A study into the non-clinical impact of the disease, including changes with progression. 2019.
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